Turner Syndrome Program

At Lurie Children’s, we take a comprehensive, patient-centered approach to care. Our Turner Syndrome Program focuses on supporting all aspects of our patients’ health, from physical and emotional well-being to educational success and beyond. This includes: 

• Coordinated care: Families can see multiple specialists in one visit, minimizing time away from school and other commitments.
• Family-centered support: We collaborate closely with parents to provide tailored care that helps each child thrive.
• Education and resources: We provide age-appropriate information on Turner syndrome, including tips on education and general wellness.
• Research opportunities: Patients can participate in research studies, to help Turner syndrome youth now and in generations to come.
• Prenatal consultations: We offer expert guidance through The Chicago Institute for Fetal Health for families expecting a child with Turner syndrome.
• Transition to adult care: We support adolescents and young adults as they move from pediatric care to adult health services.

Our program offers regularly-scheduled clinics each month, so that our patients can easily see multiple specialists on one day. This approach helps to improve ease of care and limits time off school. The clinic is offered on the fourth Monday of the month at Lurie Children's Outpatient Center in Lincoln Park. The clinic is offered on the first Tuesday of every other month at Lurie Children’s Northbrook Outpatient Center.

During your first visit to the program, you will meet with the team, including your endocrinologist, cardiologist and an otolaryngologist, if necessary. Our program’s dedicated scheduling staff will assist with setting up appointments so that you can meet your doctors on the same day for a full evaluation.

During your comprehensive first visit, we will create a recommended treatment plan, which are all tailored for each patient and their unique needs. Because we provide total care for each patient with Turner syndrome, no two treatment plans are exactly the same.

A benefit to visiting the Turner Syndrome Program at Lurie Children’s is that all of your child’s specialists are in-house and collaborate to treat each of your child’s needs. The team works together on all aspects of care to ensure the best possible outcomes.

The program offers the option to visit for a one-time consult, or to see our team’s specialists on an ongoing basis for comprehensive treatment.

Our multidisciplinary team includes specialists that are dedicated to treating patients with Turner syndrome. The program is led by endocrinologists Reema Habiby, MD, and Wendy Brickman, MD, and cardiologist Sheetal Patel, MD.

Reema Habiby, MD, is an Attending Physician in the Division of Endocrinology and Associate Professor of Pediatrics at Northwestern University Feinberg School of Medicine. She is board-certified in pediatric endocrinology and a member of The Turner Syndrome Society of the United States and the Turner Syndrome Special Interest Group (SIG) through the Pediatric Endocrine Society. 

Wendy Brickman, MD, is an Attending Physician in the Division of Endocrinology and Associate Professor of Pediatrics at Feinberg School of Medicine. She is board-certified in pediatric endocrinology, a member of The Turner Syndrome Society of the United States and one of the leaders of the Turner Syndrome Special Interest Group (SIG) through the Pediatric Endocrine Society. 

Sheetal Patel, MD, is an Attending Physician in the Heart Center and Assistant Professor of Pediatrics at Feinberg School of Medicine. She is board-certified in pediatric cardiology and also performs fetal echocardiograms as part of the Lurie Children's Fetal & Neonatal Cardiology Program. Dr. Patel is a member of The Turner Syndrome Society of the United States and The Turner Syndrome Foundation. She is also the chair person for Council on Cardiology for Girls and Women affected by Turner Syndrome organized by The Turner Syndrome Foundation.

Edward Jones, MD, is an Attending Physician in the Heart Center and Assistant Professor of Pediatrics at Feinberg School of Medicine. He is board-certified in pediatrics and pediatric cardiology. Dr. Jones is a Pediatric and Genetic Cardiologist who specializes in Cardiovascular Genetics. He focuses his care on children with genetically-mediated structural heart disease and aortopathies, such as those with Turner syndrome.

Allison Weisman, MS, CGC, and Elizabeth Leeth, MS, CGC, are the Genetic Counselors for the program. 

Lauren Robinson, RN, is Nurse Coordinator of the Turner Syndrome Program.

Danielle Lee, LCSW, is Program Manager of the Turner Syndrome Program.

Learn more about Turner syndrome by visiting the following helpful websites: