Childhood Cancer Survivor Resources

The following helpful resources for childhood cancer survivors are available online. 

• Get Empowered: video education series for adult survivors of childhood cancer
• American Cancer Society: health organization and largest non-governmental funder of cancer research and discovery
• Cancer Care: provides free support services to anyone affected by cancer
• Candlelighters Childhood Cancer Foundation: provides information, awareness, advocacy and research for childhood cancer patients and families
• Childhood Cancer Survivor Study (CCSS): The CCSS is a component of the Long Term Follow Up Study, and is a collaborative, multi-institutional study funded by a grant from the National Cancer Institute (U24 CA55727) of the National Institutes of Health and funds from ALSAC, St. Jude fundraising organization.
• Children’s Oncology Group: long-term follow-up guidelines for survivors of childhood, adolescent and young adult cancers
• Children’s Oncology Services, Inc. (COSI): provides camp opportunities for childhood cancer patients
• Critical Mass: a young adult cancer alliance of non-profits, medical institutions, patient advocacy groups, government agencies, clinicians, researchers and dedicated individuals uniting to improve the lives of adolescents and young adults (AYAs) with cancer
• Cure Search: unites the Children’s Oncology Group and the National Childhood Cancer Foundation to fund research
• Fertile Hope: provides reproductive information, support and hope to cancer patients and survivors whose medical treatments present the risk for infertility
• Gilda’s Club: provides a support community for people living with cancer, as well as their family and friend
• Leukemia Research Foundation: organization dedicated to conquering all blood cancers by funding research into their causes and cures, and enriching the quality of life of those touched by these diseases.
• Livestrong Foundation: unites people to fight cancer and support prevention, access to screening and care, and improvement of the quality of life for cancer survivors
• & Lymphoma Society" href="http://www.lls.org/" target="_blank">Leukemia & Lymphoma Society: health organization dedicated to funding blood cancer research, education and patient services
• National Cancer Institute: conducts and supports research, training, health information dissemination and programs related to cancer diagnosis and treatment
• National Children’s Cancer Society: provides support, information and education to those impacted by childhood cancer
• National Osteoporosis Foundation: provides information regarding the importance of bone health
• Oncofertility Consortium: national initiative exploring the reproductive future of cancer survivors
• Planet Cancer: an online community of young adults with cancer
• Sam Fund: assists young adult survivors by providing financial support through the distribution of grants and scholarships
• True North Treks: supports young adult cancer survivors by taking them on short-term treks in nature

Stem Cell Transplant Resources

• American Society for Blood and Marrow Transplantation (ASBMT): an international professional membership association promoting blood and marrow transplantation and cellular therapy research, education, scholarly publication and clinical standards
• BMTInfonet: provides emotional support and information about bone marrow, peripheral blood stem cell and cord blood transplants
• Center for International Blood and Transplant Marrow Research: collaborates with the global scientific community to advance hematopoietic cell transplantation and cellular therapy research
• National Bone Marrow Transplant Link: helps patients, caregivers and families cope with the challenges of bone marrow/stem cell transplant
• National Marrow Donor Program: dedicated to creating an opportunity for all patients to receive the bone marrow or umbilical cord blood transplant they need
• & Marrow Transplant Consortium" href="http://www.pbmtc.org/" target="_blank">Pediatric Blood & Marrow Transplant Consortium: supports research and education to improve the availability, safety, and efficacy of hematopoietic cell transplantation and other cellular therapeutics for children and adolescents.

Local Survivors Giving Back with Their Own Foundations

• Jonny Imerman: Imerman Angels
• Julia Stepenski: Survivorvision: Seeing Life After Cancer
• Michelle Ernsdorff: Compass to Care
• Yali Derman: Yali’s Carry On Tote Bag