Growing up with Spina Bifida can be exciting and sometimes challenging. The Spina Bifida Center at Lurie Children’s is committed to helping teens grow into successful adults who are empowered to manage their own lives and healthcare needs. Transition is about more than just transitioning to an adult medical provider, it also includes:
Increasing independence in activities of daily living
Assuming tasks of self-care
Building social relationships and support systems
Pursuing education and employment
Ideally, transition begins long before a young adult moves their care to an adult hospital or medical system. Small steps, beginning as young as 12-15 years of age, can help to establish transition readiness:
Spina Bifida Transition Coordinator and Urology physician, Diana Bowen, MD, and Physical Medicine and Rehabilitation physician, Ana-Marie Rojas, MD, see patients in Spina Bifida Clinic and in the Adult Spina Bifida Clinic at Shirley Ryan Ability Lab. They provide a continuum of care and prepare teens to transition into life as a young adult.