Spina Bifida Center

The multidisciplinary Spina Bifida Center at Lurie Children's provides compassionate, comprehensive care for children and adolescents with spina bifida, tethered spinal cords and other types of congenital spinal anomalies, from prenatal consultation through young adulthood. Our center recognizes the importance of a coordinated team approach and adapts to meet the needs of patients through every stage of growth and development. Our team include specialists from:

Spina Bifida Clinic meets every Tuesday, during which time patients may be seen by multiple specialists on the same day. Clinic is located at the Lurie Children’s Outpatient Center in Lincoln Park. The clinic team also collaborates with many different medical professionals to provide innovative and comprehensive clinical care for our patients and families. Additional supports include:


Specialists

Our Spina Bifida Center Program Director, Robin Bowman, MD, and Program Coordinator, Colleen Rosen, APN, are always available to answer any questions you may have surrounding your child’s diagnosis and long-term care. If you have any questions surrounding your child’s diagnosis, please call 312.227.4220.

Appointments

To schedule an appointment in Spina Bifida Clinic or Tethered Cord Clinic, please call 312.227.5340. Due to the nature of this clinic, online scheduling is not available.

Clinical Care Partner with the National Spina Bifida Association

The Multidisciplinary Spina Bifida Center at Lurie Children’s has been recognized as a Clinical Care Partner with the National Spina Bifida Association (SBA). To receive this esteemed recognition, 10 standards must be met. These standards are based upon practices that promote the optimal outcomes for people living with Spina Bifida.

These standards focus on:

  • Comprehensive coordination of medical and surgical care through a multidisciplinary spina bifida clinic.
  • Collaboration with a prenatal spina bifida diagnosis program.
  • Partnership with a Family Advisory Board who meet regularly and advise the clinic of patient/family experiences and improvement opportunities.

The Multidisciplinary Spina Bifida Center at Lurie Children’s is one of only a handful of clinics worldwide who have been recognized and designated as a Clinical Care Partner through the National Spina Bifida Association. For more information on this esteemed recognition, please follow this link: Clinic Care Partners - Spina Bifida Association

Our Research

Lurie Children’s Spina Bifida Center is a member of the National Spina Bifida Patient Registry, a network of clinics funded by the Center for Disease Control (CDC) to collect information regarding spina bifida. This information will be used in research efforts to establish guidelines and improve outcomes for those with spina bifida. We are one of twenty-four active sites who participate in the National Spina Bifida Registry as well as one of nine active sites who participate in the Urological Management of Newborns with Spina Bifida.

We are also involved in cutting edge research to examine shunt placement rates and the relationship between neuropsychological and psychosocial outcomes for children with myelomeningocele who have or do not have a shunt.

Search Our Clinical Studies

 

Philanthropy

Your support is vital in helping us continue to make a difference in the lives of patients and families. Lurie Children's relies on philanthropic funding to enhance its programs, services and research for children. To learn more, please e-mail the Ann & Robert H. Lurie Children’s Hospital of Chicago Foundation at foundation@luriechildrens.org or call 312.227.7500

Related Specialties

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