The multidisciplinary Spina Bifida Center at Ann & Robert H. Lurie Children’s Hospital of Chicago provides compassionate, comprehensive care for children and adolescents with spina bifida and other types of congenital spinal anomalies, from prenatal consultation through young adulthood. Our center recognizes the importance of a coordinated team approach and adapts to meet the needs of patients through every stage of growth and development. Our team include specialists from:
Spina Bifida Clinic meets every Tuesday, during which time patients may be seen by multiple specialists on the same day. Clinic is located at the Lurie Children’s Outpatient Center in Lincoln Park. The clinic team also collaborates with many different medical professionals to provide innovative and comprehensive clinical care for our patients and families. Additional supports include:
Our Spina Bifida Center Program Director, Robin Bowman, MD, and Program Coordinator, Colleen Rosen, APN, are always available to answer any questions you may have surrounding your child’s diagnosis and long-term care. If you have any questions surrounding your child’s diagnosis, please call 312.227.4220.
To schedule an appointment in Spina Bifida Clinic or Tethered Cord Clinic please call 312.227.5340 and speak to Dani Gacek, Spina Bifida Administrative Coordinator. Due to the nature of this clinic, online scheduling is not available.
Clinical Care Partner with the National Spina Bifida Association
The Multidisciplinary Spina Bifida Center at Lurie Children’s has been recognized as a Clinical Care Partner with the National Spina Bifida Association (SBA). To receive this esteemed recognition, 10 standards must be met. These standards are based upon practices that promote the optimal outcomes for people living with Spina Bifida.
These standards focus on:
Comprehensive coordination of medical and surgical care through a multidisciplinary spina bifida clinic.
Partnership with a Family Advisory Board who meet regularly and advise the clinic of patient/family experiences and improvement opportunities.
The Multidisciplinary Spina Bifida Center at Lurie Children’s is one of only a handful of clinics worldwide who have been recognized and designated as a Clinical Care Partner through the National Spina Bifida Association. For more information on this esteemed recognition, please follow this link: Clinic Care Partners - Spina Bifida Association
Your support is vital in helping us continue to make a difference in the lives of patients and families. Lurie Children's relies on philanthropic funding to enhance its programs, services and research for children. To learn more, please e-mail the Ann & Robert H. Lurie Children’s Hospital of Chicago Foundation at firstname.lastname@example.org or call 312.227.7500.