The Single Ventricle Center of Excellence offers longitudinal comprehensive treatment for patients born with single ventricle heart defects in an environment that supports the whole family. The complex anatomy of the heart and its chambers makes each single ventricle defect different and each child’s journey unique. Children born with these complex hearts need specialized treatment, evaluation and lifelong follow-up care. Our team cares for patients from before birth through adulthood. We are dedicated to improving patient surgical, medical, neurodevelopmental, and psychosocial outcomes so that our patients can lead meaningful and active lives.
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Upon graduation from the Interstage period, infants and toddlers with single ventricle defects eithercontinue withcomprehensive follow up care in our HeArT clinic at the main hospital, transition to one of ouroutreach cardiologists closer to home, or transition to local cardiologists in the community depending on their level of medical complexity and family preference. Our team strives to keep your care close to home whenever possible.
Children and young adults diagnosed with a single ventricle defect following Fontan palliation receive care in our multidisciplinarySingle Ventricle Follow-Up Clinic.
As they near adulthood, individuals with single ventricle physiologybegin the transition to ourAdult Congenital Heart Disease Program. The bridge between pediatric and adult care helps patients and their families to safely transition and minimizes disruptions in care while helping patients develop independence and gradually learn to take ownership of their own healthcare.
Journey With a Single Ventricle Defect
Single ventricle physiology is typically treated through a series of two or three palliative (non-curative) surgeries in the first few years of life.Children with these heart defects require lifelong cardiac care to ensure they have every opportunity to lead healthy lives as they grow. Unfortunately, many children will require additional operations or cardiac catheter-based procedures, complex testing, multiple hospitalizations, and frequent outpatient follow-up. Our single ventricle team is uniquely equipped to help these patients and their families face these challenges both inside and outside the hospital.
Appointments with the Single Ventricle Center of Excellence can be arranged through Emilie Weisberg at312.227.8588.
In addition to in-person visits, we now offer telemedicine visits via video or phone. Some appointments will still require you to be seen in-person, but your physician and care team will let you know if a telemedicine appointment is available.
For families or providers seeking a second opinion, we offer a Priority Second Opinion Clinic.
To help prepare families for their care with Lurie Children's Heart Center, we have compiled a list of resources that may be of use throughout treatment — whether it's getting ready for an inpatient stay or outpatient visit, or learning more about the support services available to patients and families.