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Specialties & Conditions Sickle Cell Disease Program
The Sickle Cell Disease Program is a nationally recognized center of excellence that provides comprehensive sickle cell disease care to manage the disease and prevent its complications. Our program includes:
Our staff consists of full-time pediatric hematologists, nurse specialists/nurse practitioners, a genetic counselor and a social worker dedicated to the program. The program is led by Robert I. Liem, MD, Director of the Comprehensive Sickle Cell Program and Professor of Pediatrics at Northwestern University Feinberg School of Medicine. Dr. Liem is board-certified in pediatric hematology/oncology and pediatrics.
We work to improve the health and well-being of patients affected by sickle cell disease within a kid-friendly, family-focused environment. Our specialists are trained to treat children with sickle cell disease, meet their specific needs and counsel all family members on preventive treatment measures and serious complications.
The program offers transfusion services through a therapeutic day hospital, as well as routine screening by transcranial Doppler ultrasound to assess the risk of stroke. Our clinic, which includes specialized programs for newborns and children taking the drug hydroxyurea, is open four days a week.
Sickle cell disease has short- and long-term effects on virtually every organ system, including the brain, heart, lungs, spleen and eyes. Our program stresses preventative treatment to minimize serious complications when possible.
Early diagnosis and prevention of complications is extremely important for children with sickle cell disease. Treatment may include penicillin “prophylaxis,” pain medications, increased fluid intake, blood transfusions, hydroxyurea or stem cell transplant. Treatment varies with each child, and we collaborate with parents to develop the best plan for their children.
Support services are integral to our approach and we sponsor numerous programs, such as a parent to parent network, community education and outreach, annual social activities for patients and their families, scholastic achievement programs and a formal program for transitioning patients to adult care.
Your support is vital in helping us continue to make a difference in the lives of patients and families. Lurie Children's relies on philanthropic funding to enhance its programs, services and research for children. To learn more, please e-mail the Ann & Robert H. Lurie Children’s Hospital of Chicago Foundation at foundation@luriechildrens.org or call 312.227.7500.
Sickle Cell Awareness Month in September helps bring greater understanding of sickle cell disease and inspires funding into better treatments and potential cures.
