What to Expect
Sickle cell disease has short- and long-term effects on virtually every organ system, including the brain, heart, lungs, spleen and eyes. Our program stresses preventative treatment to minimize serious complications when possible.
Early diagnosis and prevention of complications is extremely important for children with sickle cell disease. Treatment may include penicillin “prophylaxis,” pain medications, increased fluid intake, blood transfusions, hydroxyurea or stem cell transplant. Treatment varies with each child, and we collaborate with parents to develop the best plan for their children.
Support services are integral to our approach and we sponsor numerous programs, such as a parent to parent network, community education and outreach, annual social activities for patients and their families, scholastic achievement programs and a formal program for transitioning patients to adult care.