These are stressful times. If you would like to contact a social worker, psychologist or child life specialist for information on community referrals or coping resources, you can call 312.227.4118 and leave a message. Your call will be returned within 24 hours, Monday through Friday. Non-urgent questions only. For emergencies, call 911.
For information on Novel Coronavirus (COVID-19), click here.
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Approximately one hour after arrival in the PICU, you will be able to visit. Your child will be on pain medications and strong sedatives to keep them comfortable. Additionally, they will have several IV's, special tubes in the abdomen (called JP drains), a catheter into the bladder, a tube through the nose into the stomach and a breathing tube in the mouth attached to a ventilator. The PICU nurse will explain the purpose of all monitors and tubes at your first visit.
Before you see your child, you will be asked to wash your hands because hand washing is the most important way to protect your child from infection after transplant.
The breathing tube will stay in place until your child is stronger and awake enough to breathe independently. Your child should be able to eat and drink within a few days after the breathing tube is removed.
Your child will receive many IV medications while in the PICU. All of these medications will eventually be changed to oral doses when your child begins to eat and drink.
A typical stay in the PICU is three days. This will vary depending on the severity of your child's illness prior to transplant. While in the PICU, your child will have a nurse constantly monitoring his or her status. The nurse will encourage you to participate in your child's care as much as possible.
Visiting hours for healthy parents/guardians are seven days a week, 24 hours a day. Due to the amount of equipment and limited space, we ask that only two people be at the bedside at any one time. Anyone who has been exposed to communicable diseases or who is ill (colds, flu, etc.) cannot visit the PICU. Read more visitor information.
Due to limited space, we do not allow parents to sleep at the bedside. However, we have a parent/family waiting area where cots are provided.
Transferring to the Transplant Unit
When the transplant team feels your child is ready, they will be transferred to the transplant unit. At this time:
Your child should begin to eat a regular diet.
Most of your child's IV's and tubes will be removed within a week after transfer.
The staff on the transplant unit and the liver transplant team will prepare your family for discharge.
Your child may go home with a PICC line — an IV designed for long term use — and the nurses on the transplant unit will teach you how to care for this line at home.
You will know your child is ready to go home when:
They’re taking all medications by mouth and is eating and/or drinking enough to grow.
The immunosupression levels are therapeutic.
They have normal vital signs without fever.
Your family is able to give the medications appropriately, provide all necessary care for your child independently, and clearly understand the signs and symptoms of rejection and infection, and who and when to call with any problems.
Most local families will be ready to go home within two weeks. Families from out-of-town, or from more than an hour away, may wish to stay nearby for three to four weeks after discharge from the hospital.