PICU Supports: Intervention for PICU Parents
Parents of children admitted to the pediatric intensive care unit (PICU) often face difficult decisions. Research demonstrates challenges with communication in the PICU which could impact decision making. We brought together a multi-stakeholder group of parents and healthcare professionals to develop a navigator-based intervention program called PICU Supports. Our hope is that this program, PICU Supports, will improve communication, decision making, and the overall experience for parents of critically ill children. The principle investigator of this study is Dr. Kelly Michelson.
This work is supported through a Patient-Centered Outcomes Research Institute (PCORI) Program Award (CD1304-6449).
PICU Supports aims to provide the following types of support to parents of patients in the PICU:
- Communication (between healthcare team members and parents/families as well as among healthcare team members)
- Decision making
- Transitional (i.e., discharge transitions to a non-PICU hospital bed, a long term care facility or home)
Support is accomplished by navigator engagement with parents and healthcare team members, and the guided use of navigator-supported ancillary tools provided to parents and health team members (HTMs) as needed. PICU Supports uses a predefined framework of activities and tools to provide individualized support directed by the needs of the parent and the patient’s situation.
Navigator Activities & Descriptions
The table below lists the navigator activities and provides more detailed descriptions.
|Initial visit with members of the healthcare team||
|Initial visit with the parents||
|Weekday visits with members of the healthcare team||
|Weekday visits with parents||
|Coordination of family meetings||
|Support for transitions out of the PICU||
|Post-PICU discharge check in||
Ancillary Tools & Descriptions
The table below lists the ancillary tools and provides more detailed descriptions.
|PICU Handbook||A book (written by our Parent Advisors, Healthcare Team Member Advisors and Research Advisors) with information about: how the PICU runs; medical terms, machines and procedures; and how parents can support themselves and their family while their child is in the PICU.|
|Diary||A place for parents to keep a diary of events and goals for their child.|
|Question prompt list||A list of questions covering issues relevant to parents of children in the PICU. The list is meant to help parents think about questions they might want ask the healthcare team.|
|Provider information sheet||Written information, compiled by the Navigator and given to healthcare team members, about the parents’ psychosocial issues, concerns, needs, or goals.|
|Bedside communication log||A log where Healthcare Team Members (other than PICU physicians, nurses and advanced practice nurses) write their name and service so parents know which Healthcare Team Members have visited.|
|End-of-life care checklist||A list of activities or options that should be offered to families of dying children that the Navigator ensures are addressed.|
|Bereavement packet||A packet of written information to support parental and family bereavement for those whose child dies.|
|Ancillary information||Additional informational resources (e.g. websites, written materials) relevant to the patient’s medical situation.|
Visit our Ancilllary Tools page to learn more about the tools and download the handout.