Parents of children admitted to the pediatric intensive care unit (PICU) often face difficult decisions. Research demonstrates challenges with communication in the PICU which could impact decision making. We brought together a multi-stakeholder group of parents and healthcare professionals to develop a navigator-based intervention program called PICU Supports. Our hope is that this program, PICU Supports, will improve communication, decision making, and the overall experience for parents of critically ill children. The principle investigator of this study is Dr. Kelly Michelson.
This work is supported through a Patient-Centered Outcomes Research Institute (PCORI) Program Award (CD1304-6449).
PICU Supports aims to provide the following types of support to parents of patients in the PICU:
Support is accomplished by navigator engagement with parents and healthcare team members, and the guided use of navigator-supported ancillary tools provided to parents and health team members (HTMs) as needed. PICU Supports uses a predefined framework of activities and tools to provide individualized support directed by the needs of the parent and the patient’s situation.