The therapy team focuses on providing interventions that are family-centered and take a preventative approach to helping children expand their mobility and function.
The Lurie Children's Difference
In the MDA clinic, our coordinated and interdisciplinary approach to care for patients with these neuromuscular disorders ensures that the patient and family will see multiple providers including the therapist, orthotist, bone health specialist, pulmonologist, neurologist and social worker. Together, the team members work towards the goal of providing long term options for maintaining child’s health and participation in their environment.
Children who are seen in the clinic setting may also be referred to outpatient services when additional needs arise. By providing locations for ongoing occupational and physical therapy services, we ensure continuity of care and facilitate communication between the multiple providers involved in your child’s care.
What to Expect
Children with these neuromuscular diagnoses may meet our occupational and physical therapists in different settings. Children may be seen in Muscular Dystrophy Association (MDA) Clinic or they may be referred directly to physical therapy and occupational therapy. In the MDA Clinic, we offer a multi-faceted assessment by a physical and occupational therapist to identify all details impacting patients' function in their daily life.
For children referred directly to physical therapy and occupational therapy, we offer individual evaluations completed by a team of two therapists. This occupational or physical therapy-specific evaluation is completed over an hour-long visit and allows for an in-depth assessment of your child’s needs and abilities. Assessments will be completed to evaluate and understand:
Task/activities your child enjoys and is successful in doing
Tasks that are challenging for your child and family
Range of motion and strength
Functional movement patterns
Posture and gait abnormalities
Needs related to assistive devices, mobility devices and bracing
Therapists will also complete diagnosis specific standardized tests such as the North Star Ambulatory Assessment (NSAA), Modified Hammersmith Functional Motor Scale (MHFMS), CMTPeds or the Six Minute Walk Test to determine your child’s current level of function and to help track their ongoing progress.
Based on your input and the therapist’s assessment of your child’s needs, additional visits are planned to work on:
Facilitating participation and function within the child’s typical environment
These visits will vary in frequency and duration based on your child’s goals and abilities. Some children may need a few visits for education and development of a home program, while others may benefit from ongoing treatment sessions which allow hands-on work with a therapist. These recommendations for treatment will be made in collaboration with the parents and child.
Make an Appointment
Children being seen in the MDA clinic do not have to schedule an additional evaluation to be seen by the therapy team. This evaluation is provided for all children attending the clinic.
To schedule an evaluation with physical or occupational therapy at one of our outpatient locations, please call 1.800.543.7362 (1.800.KIDS DOC).