These are stressful times. If you would like to contact a social worker, psychologist or child life specialist for information on community referrals or coping resources, you can call 312.227.4118 and leave a message. Your call will be returned within 24 hours, Monday through Friday. Non-urgent questions only. For emergencies, call 911.
For information about telemedicine appointments, click here.
For information on Novel Coronavirus (COVID-19), click here.
Para obtener información sobre el COVID-19 en español, haga clic aquí.
Lurie Children’s Neuromuscular Program strives to provide individualized care for children of all ages with neuromuscular disease. Our team consists of clinical and research experts that are dedicated to developing new treatments for rare neuromuscular disorders. We take a multi-disciplinary approach to help address all of our patients needs. Our team consists of: Neurology, Cardiology, Pulmonary Medicine, Genetics, Bone Health, Orthopedics, Physical Therapy, Orthotics, Occupational Therapy, Nutrition and Social Work. We offer a multidisciplinary clinic that allows the patient to complete diagnostic testing, and meet with several specialists all in one day. We provide advanced clinical care and are motivated by research to provide the latest developments in treating many neuromuscular diseases. Our physicians work closely with research laboratories in an effort to discover the latest developments in Neuromuscular Medicine. We utilize advanced testing to help our clinicians diagnose many neuromuscular disorders. Our advanced diagnostic tools give us the ability to confirm a diagnosis through objective data. We offer testing that includes: electromyography (EMG), nerve conduction velocity (NCV), lumbar punctures, muscle biopsies and genetic testing to help our clinicians confidently secure a neuromuscular diagnosis.
The Lurie Children's Difference
Our program offers an advanced level of care for children suffering from muscular dystrophy, spinal muscular atrophy and other neuromuscular disorders. The program also trains future specialists, provides state-of-the-art diagnostic and treatment resources, and advances cutting-edge research in this emerging field.
The program’s research team provides information to families and facilitates participation in clinical research trials. We are part of several research consortia investigating different steroid regimens, cardiac medications and nutritional supplements to provide our families with an opportunity to participate in trials that may improve health for children living with neuromuscular conditions.
The Mazza Foundation has been committed to improving the lives of Chicagoans for more than 50 years. It provides vital funding for programs in healthcare, social services and education, as well as for cultural and religious organizations.
Your support is vital in helping us continue to make a difference in the lives of patients and families. Lurie Children’s relies on philanthropic funding to enhance its programs, services and research for children. To learn more, please e-mail the Ann & Robert H. Lurie Children’s Hospital of Chicago Foundation at email@example.com or call 312.227.7500.