What to Expect
During an appointment at our clinic, a child will see knowledgeable healthcare specialists from a variety of disciplines during the same appointment. The clinic will be held several days each month. Visits can last between two to three hours to allow each child time to be seen by all the consultants necessary for their individualized treatment plan. Specialists that are available during clinic include a neurologist, a pulmonologist, an orthopedic surgeon, physical and occupational therapists, a nurse educator, a metabolic bone health pediatric nurse practitioner, a clinical nutritionist, orthotists, the MDA Healthcare Services Coordinator and a social worker. We can also coordinate appointments with cardiology and other disciplines if necessary.
The Mazza Foundation Neuromuscular Program research coordinator will also be present in the MDA clinic to provide information to families and facilitate participation in approved clinical research trials. We are part of several research consortia investigating different steroid regimens, heart medication and nutritional supplements to provide our families with an opportunity to participate in trials that may improve health for children living with neuromuscular conditions.