Specialties & Conditions Ketogenic Diet Program
Lurie Children’s Ketogenic Diet Program is one of the country’s largest and most comprehensive care programs of its kind. The combined efforts of our dietitians, nurse practitioners and social worker, provide care and support that extends beyond the hospital walls, not only for your child but for your entire family.
There are three essential components of all food: fats, carbohydrates and protein. The ketogenic diet is a carefully prescribed ratio of fats to carbohydrates and protein. This ratio causes the body to convert fat into substances called ketone bodies (thus the name). These ketones are then used for fuel in many cells of the body, including the brain. When this happens, the brain goes into a higher energy state and is better able to protect itself against seizures.
The ketogenic diet works in a fundamentally different way than medications. Scientists have found many different mechanisms of action which contribute to the diet’s success, but one common theme is that instead of causing sedation, a common side-effect of medication, the diet can actually make a child more alert and focused.
Ketogenic FoodsThe diet’s main fat sources include:
Many strict forms of the diet remove the following foods:
All of our diets are developed with each individual child in mind. We focus on what the child likes to eat and try as much as possible to incorporate their favorite foods into their diets, and many children actually enjoy their keto food. Even if your child is already on a special diet due to allergies or food intolerances, our team can still incorporate these special needs into your child's ketogenic diet.
We also understand that kids are constantly growing and their tastes are constantly changing, so menus are always being revised. Our team also makes sure to appropriately change calorie levels and make the proper food ratio adjustments to keep seizures under control.
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We use the diet to treat a variety of seizure types and epilepsy syndromes, and encourage parents to research the diet at the beginning of their child’s treatment. Our goal is to use the ketogenic diet earlier to avoid side effects of medications and control seizures sooner in a child’s diagnosis.
This may require a lifestyle change for many families, so we advise families who are interested in the diet to learn more by reading some of our excellent printed resources and to talk to each person who regularly cares for the child to make sure there is agreement to try the diet. We usually encourage an appointment with one of our epileptologists to confirm that the diet is right for your child, and then an appointment with our ketogenic diet team to go over more of the details.
Typical Treatment ProcessMany children are weaned off the diet after a few years, but other children decide to stay on it longer because it’s helpful for seizure control. However, if your child wants to come off the diet, you should consult your physician and the ketogenic diet team to make sure your child is properly weaned.
We realize that the ketogenic diet can be very demanding of children and families, so we make sure that we stay with families throughout the entire treatment. Our multidisciplinary team includes a social worker that can help your child and their siblings cope with the stresses that come with the diet. Your child will also have regular, relationship-building contact with the same team of nurses. Additionally, we have an education specialist on staff who specializes in meeting with teachers and administrators to help prepare schools for children with epilepsy.
Despite the fact that your child will be mostly eating fats, they won’t gain weight. The portions for every item at every meal are extremely precise; one of our dietitians will plan meals for your child with set ratios that should be followed as closely as you would a dosage of medication. Daily meals are also balanced with physical exercise when medically possible.
You can reach the ketogenic diet team by calling the Epilepsy Center at 312.227.3540. Our team members include:
Entry into the ketogenic diet program is done through our Epilepsy Center’s physician referrals. To schedule an appointment with one of our epileptologists, call our Epilepsy Center at 312.227.3540.
Explore every component of our multidisciplinary approach to epilepsy treatment by visiting some of our other care areas. Read more about our care.
For more information on the ketogenic diet, visit The Charlie Foundation’s website or take a look at the sites listed below.
