In order for patients and families to choose the best medical care, they need the tools and information to make educated decisions. Accurate and accessible data allows patients and families to compare programs, evaluate their benefits and risks, and choose the program that best fits their needs. Industry-wide transparency is necessary for families to make informed decisions – without it, patients may experience unnecessary risk or harm.
Currently, it’s very difficult for a parent to evaluate and compare program performances for various reasons, which include:
To proactively address these challenges, the Pediatric Congenital Heart Association organized a summit.