Health-related quality of life (HRQOL) refers to the perception of the impact of a specific illness, medical therapy, or health services policy on a person’s ability to participate and find satisfaction in life’s physical, psychological, and social experiences. The Pediatric Cardiac Quality of Life Inventory (PCQLI) is a disease-specific HRQOL instrument for children (8-12 years of age) and adolescents (13-18 years of age) with congenital or acquired heart disease (HD). This inventory was designed to improve patient-centered medical treatment and outcome. The PCQLI forms include both self-respondent and parent/proxy reporting. The PCQLI was developed at the Children's Hospital of Philadelphia and tested in a 19 center multi-national, multi-site validation study in the United States and England to test reliability, validity, generalizability, and responsiveness of the instrument.
The PCQLI is intended for use in both clinical and research settings. Listed below are a few of the diagnostic, evaluative, and prognostic applications of this inventory:
Complete this form to submit a request for access to PCQLI forms.
For additional information about the PCQLI, please contact:
Bradley S. Marino, MD, Attending Physician, Cardiology
Ann & Robert H. Lurie Children's Hopsital of Chicago
Professor of Pediatrics-Cardiology, Northwestern University Feinberg School of Medicine