Fetal Family Stories

From Her Baby’s Spina Bifida Diagnosis to Toddler Stage, One Mother’s Story in Her Own Words

Kylie shares her family’s journey from her baby’s spina bifida diagnosis, through fetal surgery and after. 

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After Treatment for BPS, Leonie and Her Family are Breathing Easier

At just 28 weeks, Libby had an uneasy feeling about her pregnancy with her daughter, Leonie. To ensure everything was okay with Leonie’s health as well as Libby’s, she went for an emergency ultrasound. Libby was right. There was an alarming rate of fluid building up in Leonie’s chest and abdomen, as well as Libby’s uterus. 

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Baby Girl Joins Twin Sister at Home After Fetal Surgeon Removes Her Life-Threatening Tumor

Twin sisters Jenessa and Genesis were delivered December 19, but couldn’t go home till June. Just months earlier, the girls’ chances for survival were uncertain when one of the twins was diagnosed with a large teratoma tumor on her neck, also potentially affecting the other twin’s health since they shared a placenta.

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Carson is Writing His Own Story after Being Diagnosed with a Congenital Diaphragmatic Hernia

At Katrina’s 20 week ultrasound, doctors noticed something alarming: it appeared as if there was a mass on the baby’s lungs. Since they could not explain this finding further, her doctors told her to consider transferring to Lurie Children’s because of their expertise and access to The Chicago Institute for Fetal Health.

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Taking One Step at a Time: Charlotte’s Journey with Spina Bifida

“Learning we were having a girl was the best news we could receive. I wanted my little princess so badly,” Lindsay, Charlotte's mom, said. “However, our emotions took a quick turn once our baby was diagnosed with a myelomeningocele, the most severe type of spina bifida.” 

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Prenatal Repair for Myelomeningocele Helps Baby Caleb Beat the Odds

As every mother wishes, Erika was hoping her baby was healthy and without complications during her routine ultrasound at 21 weeks. However, after her ultrasound, thoughts of a smooth pregnancy and healthy baby were put on hold momentarily. Doctors found her baby showed signs related to Myelomeningocele (MMC), a severe form of spina bifida.

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Twin Girls Thrive Thanks to Expertise in Fetal Surgery

In July 2017, Kimberly Husko and her husband Jeremiah were excited to learn they were expecting twins. Their excitement soon gave way to confusion when a routine ultrasound test four months later during Kimberly's second trimester indicated something unusual: the ultrasound couldn't detect "Baby B"'s bladder.

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Fetal Surgery Repairs Baby’s Spina Bifida, Providing New Hope for an Active Future

Determined to have a healthy pregnancy, Kylie Mattioda did everything in her power to prioritize her baby’s well-being. She was alarmed, to say the least, when a 22-week ultrasound scan came back with unexpected results.

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Congenital Diaphragmatic Hernia – Our Family’s Journey

One family shares their journey through treatment after learning their unborn child has a rare birth defect, CDH – congenital diaphragmatic hernia. 

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