Tuberous sclerosis complex (TSC) is a genetic disorder that causes tumors to form in many different organs including the brain, eyes, heart, kidney, skin and lungs. The features of TSC that most strongly impact quality of life are often associated with the brain such as seizures, developmental delay, intellectual disability and autism. However, incidence and severity of the various aspects of TSC can vary widely between individuals. The Lurie Children’s Epilepsy Multidisciplinary TSC Clinic’s goal is to provide quality care to individuals with TSC, manage research that will contribute to better treatment and a cure for TSC, and provide a complete medical team to coordinate treatment for all aspects of TSC.
Lurie Children’s Epilepsy Multidisciplinary TSC Clinic team includes a physician, nurse practitioner, social worker, genetic counselor, nurse dedicated to treating all aspects of Tuberous Sclerosis Complex. Our TSC clinic collaborates with several other specialists at Lurie Children’s necessary for treatment and monitoring including those from dermatology, renal, pulmonology, neurosurgery, cardiology, dentistry, ophthalmology, and psychiatry.