Make an Appointment
We have several different visit types to ensure that individuals with Down syndrome receive age appropriate care.
In collaboration with The Chicago Institute for Fetal Health through Ann & Robert H. Lurie Children’s Hospital of Chicago, we offer confidential prenatal consultation for families who receive a prenatal diagnosis of Down syndrome. Parents who receive a prenatal diagnosis are given an opportunity to meet and talk with a developmental pediatrician about Down syndrome and ask questions.
Whether or not you opt for a visit at The Chicago Institute for Fetal Health, we welcome you to join the clinic after the baby is born. Please contact the Lurie Children’s Division of Developmental and Behavioral Pediatrics for more information on the Down syndrome clinic.
Families of newborns or young infants are welcome to come in for a "new baby visit" with one of our providers, and if desired, with a physical therapist as well. The physician will review medical history, discuss development, and answer any questions the family may have.
Interdisciplinary Infant and Toddler Appointment
This clinic for children from 12 months to 5 years provides a comprehensive evaluation using an interdisciplinary team approach, usually with speech, occupational, and physical therapy. These visits are held on Monday afternoons several times a month. This consists of a two hour appointment during which the physician and therapist team evaluates the child at once. Children are typically seen in this clinic once to twice yearly.
Individualized Visits for Children and Teens
For children ages 5 to 18 years, we offer an individualized approach. We provide a comprehensive developmental pediatrics/neurology visit on an approximately annual basis or more often as needed depending on the child’s needs. We have several designated relationships with subspecialty providers who have a special interest in Down syndrome, so the referral process for this is straight-forward. We can also work to coordinate same-day visits or co-visits with therapists in our division. This is individualized for each family based on individual needs and desires. We work with each family to make their visits as efficient and accommodating as possible.
During the visit to the Down syndrome clinic, your physician might discuss with you the need for other specialty providers to be involved in your child’s care. If your child is followed by a specialist elsewhere, you can certainly continue care with that provider. The following is a partial list of providers that are available through Lurie Children's:
Please call 1.800.543.7362 (1.800.KIDS DOC) to initiate all referrals into the Down syndrome clinic. Once the referral has been entered, then the office staff will reach out to you to complete questionnaires. Appointments are scheduled after questionnaires have been completed. Prior to your appointment, we also encourage you to sign up for MyChart.
What to Expect at Your Appointment
To help you prepare for your child's appointment with the Down Syndrome Clinic, download our informational sheet.