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Engaging stakeholders to design a comparative effectiveness trial in children with uncontrolled asthma

Erwin, K.; Martin, M. A.; Flippin, T.; Norell, S.; Shadlyn, A.; Yang, J.; Falco, P.; Rivera, J.; Ignoffo, S.; Kumar, R.; Margellos-Anast, H.; McDermott, M.; McMahon, K.; Mosnaim, G.; Nyenhuis, S. M.; Press, V. G.; Ramsay, J. E.; Soyemi, K.; Thompson, T. M.; Krishnan, J. A.

J Comp Eff Res. 2015 Dec 23; 5(1):17-30


AIM: To present the methods and outcomes of stakeholder engagement in the development of interventions for children presenting to the emergency department (ED) for uncontrolled asthma. METHODS: We engaged stakeholders (caregivers, physicians, nurses, administrators) from six EDs in a three-phase process to: define design requirements; prototype and refine; and evaluate. RESULTS: Interviews among 28 stakeholders yielded themes regarding in-home asthma management practices and ED discharge experiences. Quantitative and qualitative evaluation showed strong preference for the new discharge tool over current tools. CONCLUSION: Engaging end-users in contextual inquiry resulted in CAPE (CHICAGO Action Plan after ED discharge), a new stakeholder-balanced discharge tool, which is being tested in a multicenter comparative effectiveness trial.

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