The Center for Community Health (CCH) at Northwestern University Feinberg School of Medicine reports that Sherif Badawy, MD, and Leonardo Barrera, MPH, at Lurie Children's are developing a phone application that aims to help adolescents and young adults manage their social, emotional, and health issues related to their sickle cell diagnosis. The Stakeholder-Academic Resource Panels (ShARP) session was held to receive feedback on the app in its current stage and to help guide further development for maximum use.
Feedback was provided from two ShARP sessions. One was held with adolescents living with sickle cell disease (SCD) and their adolescent friends/family members. A separate session was held with adults ranging from parents of children with SCD to social workers and child life specialist. Both sessions were co-facilitated by Roxane Padilla, a research coordinator with AllianceChicago. Mrs. Padilla has an extensive background in adolescent and young adult health with a focus on peer-based health education interventions.
CCH is part of the Institute for Public Health and Medicine at the Feinberg School. Sherif Badawy is Assistant Professor of Pediatrics - Hematology/Oncology at the Feinberg School and an attending physician in the Center for Cancer and Blood Disorders at Lurie Children’s. Leonardo Barrera is a clinical research coordinator in the Center for Cancer and Blood Disorders at Lurie Children’s.