Read Posts About Patient Stories

Giving families the best possible experience is the core of Lurie Children's mission. Our inspirational patient stories drive us to continue to provide high-quality, pediatric care for every family that walks through our door. Hear more from our patients and their families here.

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‘She Never Gave Up:’ Jazzy’s Heart Health Scare Turns Remarkable Recovery

As a healthy 10-year-old, Adriana didn’t suspect anything serious when her daughter, Jazzy, developed a persistent cough. Learning she was in heart failure and would eventually need a transplant began a journey paved with perseverance and persistence. 

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With Comprehensive Cardiology Care, Xavier Kicks Off a Bright Future

Xavier received a life-saving heart transplant, becoming the first patient with muscular dystrophy to undergo this surgery at Lurie Children's. His strength helps pave the way for future heart transplants in children with neuromuscular disorders.

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No Airfare Needed: Libi Finds Expert Rare Disease Care Close to Home

Born prematurely with complex medical issues, Libi receives a life-changing diagnosis of Williams syndrome. Lurie Children's multidisciplinary care team provides her with expert treatment and support, close to home.

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Miranda and Isabelle’s Story: Twins’ Condition Takes a Last-Minute Turn

After being diagnosed with TTTS, a rare condition affecting twins, Roberta was referred to a specialist team at Lurie Children's Hospital. Despite challenges and complications, both girls are healthy and thriving at 19 months old.

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The Falasz Family Finds Comfort in Their Care Team After Turner Syndrome Diagnosis

At 18 months, Rose was diagnosed with a genetic condition that she'd have to manage the rest of her life - Mosaic Turner Syndrome. Thankfully, her parents found immense comfort in the experts at Lurie Children's. 

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Revolutionary Therapy Provides Hope to Rare Disease Patients like Wesley

At 19 months old, Wesley was diagnosed with a rare, genetic disorder called Hunter Syndrome. His parents moved to Chicago to pursue the best possible treatment option - a revolutionary clinical trial with Dr. Barbara Burton.

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‘Welcome to Your New Home:’ A Look at the Process of Transporting Hearts

Alexa Tannous, one of the physician assistants (PA) in the Heart Center’s cardiovascular and thoracic surgery,  shares these details and more on the integral – and emotional – process of safely transporting these precious organs.

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Kelin ‘In Good Hands’ with ENT Expert in Robotic Surgery

Kelin had a large vascular lesion in her throat that was growing and needed to be surgically removed and came to Lurie Children's state-of-the-art pediatric Robotic Surgery Program.

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Giving Back When the Journey Is Not Over: Hope’s Story

One little girl's resilience fuels a movement: Hope's journey with spina bifida and the fundraising tournament that followed. 

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Innovative Botox Therapy Allows Franny to Thrive Independently After Difficult Years of Gastroparesis

20-year-old Franny faced challenges with digestive disorders most of her childhood. But when her symptoms became too severe to manage on her own, her care team turned to an unsuspecting treatment: Botox injections.

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Sickle Cell Patient Honored for Grassroots Solution to Food Insecurity

Jamarion, a 14-year-old with sickle cell disease, has been feeding the homeless in his community for more than five years. He was recently honored with the Lurie Children's Hope & Courage Youth Advocate Award for his commitment to improving the health and well-being of children and youth

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The Light Luca Left: One Family’s Story of ‘Gratitude and Love’

Luca was a special baby who lived a bright life for five precious months. His parents, Liz and John, planned a fundraiser to raise awareness for Trisomy 18 and give back to Lurie Children's NICU.

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