Read Posts About Patient Stories
Giving families the best possible experience is the core of Lurie Children's mission. Our inspirational patient stories drive us to continue to provide high-quality, pediatric care for every family that walks through our door. Hear more from our patients and their families here.
Owen Thrives with Fewer Seizures After First-Ever Genetic Treatment for Dravet
When Owen was diagnosed with Dravet syndrome at 13 months old, no treatments addressed the genetic root cause. Today, 12-year-old Owen is thriving after joining the first gene therapy trial for Dravet syndrome at Lurie Children's Hospital—offering new hope for rare epilepsy treatment.
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For Milo Foundation
After losing their son Milo to CDH at 18 days old, Sarah and Kevin created the For Milo Memorial Fund to help families facing the loss of a child with end-of-life expenses.
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Evie’s Story: Celebrating Milestones after d-TGA Surgery
From devastating prenatal diagnosis to thriving toddler. Learn how Lurie Children's Heart Center transformed one family's journey with compassionate, comprehensive care.
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Avonlea's Story: Life the Rare Way
Avonlea is 1 of an estimated 1,000 people in the world to be diagnosed with a rare genetic condition called Cardiofaciocutaneous syndrome. Read about the milestones and rare moments her mom says has made their journey more meaningful than she could have ever imagined.
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After Tumor Diagnosis, Lurie Children’s Provides ‘Only Opportunity to Preserve’ Georgie’s Fertility
After cancer threatened her fertility at age 4, Georgie's parents turned to Lurie Children's groundbreaking program to preserve her future family options.
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Luna’s Story: A Tiny Heart with Tremendous Courage
At the 23-week ultrasound, Ashlee and Marty learned their baby had a serious heart defect known as hypoplastic left heart syndrome (HLHS). Thankfully, advances in pediatric heart care have transformed what’s possible for babies, turning once-unimaginable diagnoses into treatable conditions with real hope for the future.
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Among the First at Lurie Children’s: Emmanuel’s Path to a Cure for Sickle Cell Disease
For Emmanuel, new possibilities for his sickle cell disease appeared once he met his care team led by Dr. Robert Liem and Dr. Sonali Chaudhury at Lurie Children’s.
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Bravery in BiPAP: How Angel Built Confidence Through the PAP Desensitization Clinic
Read about how Angel went from fearing his BiPAP machine to calling it his "best friend"—and why his journey with Lurie Children's PAP Desensitization Clinic represents a crucial innovation in pediatric care.
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A Lurie Children’s First: Dual Heart-Liver Transplant Gives Debron a New Beginning
After months of waiting and a lifetime of surgeries, Debron received the call that changed everything. Discover how this resilient 16-year-old and his family found hope and a "CCU family" during a historic dual-organ transplant.
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McKenna’s Story: A Fast-Moving Stroke, a Lifesaving Response
When 12-year-old McKenna collapsed during gym class, a rapid diagnosis of pediatric stroke changed everything. Thanks to the swift action of her school nurse and the expert neurointerventional team at Lurie Children’s, McKenna underwent a life-saving procedure that led to a full recovery.
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10 Years of Celebrating Aidan’s Life: How the Aidan Shea Foundation Honored His Legacy and Supported PICU Families
This tribute commemorates the 10th anniversary of the Aidan Shea Foundation. Over the last decade, the foundation and the Elmhurst community have raised over $200,000 for Lurie Children’s, ensuring Aidan’s generous spirit continues to impact others.
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Alex’s Story: Living With Spina Bifida, Supported Every Step of the Way
Celebrating 50 years of the Lurie Children’s Spina Bifida Program. Read Alex’s inspiring journey from a prenatal diagnosis to wheelchair basketball star.
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