Lurie Children's Blog Search Results

• Educational Support Helps Carter Thrive After Heart Transplant

  Lurie Children's NICU-Cardiac Neurodevelopmental Program offers specialized care for children with congenital heart disease who face developmental challenges. Learn more about Carter's story and how he is thriving today.

• Sawyer’s Fighting Chance: His Own Father

  Newborn baby Sawyer battled a life-threatening liver condition for months until the most perfect donor was found and turned everything around: his own dad.  

• How Beckett Got His Shine Back After the Cloud of a Brain Tumor Diagnosis

  What began as suspected GI troubles became a journey that changed everything. Beckett was 6 years old when he found out he had a brain tumor, and now, one year later, the McBride family is finally feeling a refreshed sense of hope. 

• Thanks to Life-Saving Critical Care, Riley Is ‘Showing off His Big Smile Again’

  Riley, a young boy with chronic illness, battles a life-threatening complication in Lurie Children's PICU. Read his inspiring story of perseverance and recovery.

• Recovered from a Brain Tumor, Peyton is Poised to Shine

  Follow Peyton's inspiring journey from aspiring broadcast journalist to cancer survivor as she navigates through surgeries and treatments with resilience and determination. 

• ‘She Never Gave Up:’ Jasy’s Heart Health Scare Turns Remarkable Recovery

  As a healthy 10-year-old, Adriana didn’t suspect anything serious when her daughter, Jasy, developed a persistent cough. Learning she was in heart failure and would eventually need a transplant began a journey paved with perseverance and persistence. 

• With Comprehensive Cardiology Care, Xavier Kicks Off a Bright Future

  Xavier received a life-saving heart transplant, becoming the first patient with muscular dystrophy to undergo this surgery at Lurie Children's. His strength helps pave the way for future heart transplants in children with neuromuscular disorders.

• No Airfare Needed: Libi Finds Expert Rare Disease Care Close to Home

  Born prematurely with complex medical issues, Libi receives a life-changing diagnosis of Williams syndrome. Lurie Children's multidisciplinary care team provides her with expert treatment and support, close to home.

• Miranda and Isabelle’s Story: Twins’ Condition Takes a Last-Minute Turn

  After being diagnosed with TTTS, a rare condition affecting twins, Roberta was referred to a specialist team at Lurie Children's Hospital. Despite challenges and complications, both girls are healthy and thriving at 19 months old.

• The Falasz Family Finds Comfort in Their Care Team After Turner Syndrome Diagnosis

  At 18 months, Rose was diagnosed with a genetic condition that she'd have to manage the rest of her life - Mosaic Turner Syndrome. Thankfully, her parents found immense comfort in the experts at Lurie Children's. 

• Revolutionary Therapy Provides Hope to Rare Disease Patients like Wesley

  At 19 months old, Wesley was diagnosed with a rare, genetic disorder called Hunter Syndrome. His parents moved to Chicago to pursue the best possible treatment option - a revolutionary clinical trial with Dr. Barbara Burton.

• ‘Welcome to Your New Home:’ A Look at the Process of Transporting Hearts

  Alexa Tannous, one of the physician assistants (PA) in the Heart Center’s cardiovascular and thoracic surgery,  shares these details and more on the integral – and emotional – process of safely transporting these precious organs.

• Kelin ‘In Good Hands’ with ENT Expert in Robotic Surgery

  Kelin had a large vascular lesion in her throat that was growing and needed to be surgically removed and came to Lurie Children's state-of-the-art pediatric Robotic Surgery Program.

• Giving Back When the Journey Is Not Over: Hope’s Story

  One little girl's resilience fuels a movement: Hope's journey with spina bifida and the fundraising tournament that followed. 

• Innovative Botox Therapy Allows Franny to Thrive Independently After Difficult Years of Gastroparesis

  20-year-old Franny faced challenges with digestive disorders most of her childhood. But when her symptoms became too severe to manage on her own, her care team turned to an unsuspecting treatment: Botox injections.

• Sickle Cell Patient Honored for Grassroots Solution to Food Insecurity

  Jamarion, a 14-year-old with sickle cell disease, has been feeding the homeless in his community for more than five years. He was recently honored with the Lurie Children's Hope & Courage Youth Advocate Award for his commitment to improving the health and well-being of children and youth