Lurie Children's Blog Search Results

• With Comprehensive Cardiology Care, Xavier Kicks Off a Bright Future

  Xavier received a life-saving heart transplant, becoming the first patient with muscular dystrophy to undergo this surgery at Lurie Children's. His strength helps pave the way for future heart transplants in children with neuromuscular disorders.

• No Airfare Needed: Libi Finds Expert Rare Disease Care Close to Home

  Born prematurely with complex medical issues, Libi receives a life-changing diagnosis of Williams syndrome. Lurie Children's multidisciplinary care team provides her with expert treatment and support, close to home.

• Miranda and Isabelle’s Story: Twins’ Condition Takes a Last-Minute Turn

  After being diagnosed with TTTS, a rare condition affecting twins, Roberta was referred to a specialist team at Lurie Children's Hospital. Despite challenges and complications, both girls are healthy and thriving at 19 months old.

• The Falasz Family Finds Comfort in Their Care Team After Turner Syndrome Diagnosis

  At 18 months, Rose was diagnosed with a genetic condition that she'd have to manage the rest of her life - Mosaic Turner Syndrome. Thankfully, her parents found immense comfort in the experts at Lurie Children's. 

• Revolutionary Therapy Provides Hope to Rare Disease Patients like Wesley

  At 19 months old, Wesley was diagnosed with a rare, genetic disorder called Hunter Syndrome. His parents moved to Chicago to pursue the best possible treatment option - a revolutionary clinical trial with Dr. Barbara Burton.

• ‘Welcome to Your New Home:’ A Look at the Process of Transporting Hearts

  Alexa Tannous, one of the physician assistants (PA) in the Heart Center’s cardiovascular and thoracic surgery,  shares these details and more on the integral – and emotional – process of safely transporting these precious organs.

• Kelin ‘In Good Hands’ with ENT Expert in Robotic Surgery

  Kelin had a large vascular lesion in her throat that was growing and needed to be surgically removed and came to Lurie Children's state-of-the-art pediatric Robotic Surgery Program.

• Giving Back When the Journey Is Not Over: Hope’s Story

  One little girl's resilience fuels a movement: Hope's journey with spina bifida and the fundraising tournament that followed. 

• Innovative Botox Therapy Allows Franny to Thrive Independently After Difficult Years of Gastroparesis

  20-year-old Franny faced challenges with digestive disorders most of her childhood. But when her symptoms became too severe to manage on her own, her care team turned to an unsuspecting treatment: Botox injections.

• Sickle Cell Patient Honored for Grassroots Solution to Food Insecurity

  Jamarion, a 14-year-old with sickle cell disease, has been feeding the homeless in his community for more than five years. He was recently honored with the Lurie Children's Hope & Courage Youth Advocate Award for his commitment to improving the health and well-being of children and youth

• The Light Luca Left: One Family’s Story of ‘Gratitude and Love’

  Luca was a special baby who lived a bright life for five precious months. His parents, Liz and John, planned a fundraiser to raise awareness for Trisomy 18 and give back to Lurie Children's NICU.

• After Life-Threatening Accident, Aidan Aces Three World-Class Marathons

  Four years ago, Aidan was struck by a car on his bike and rushed to Lurie Children’s with critical injuries to his spine and vital organs. After his recovery, he completed his first Chicago Marathon with Team Lurie Children’s in 2021. 

• I met Dr. Nugent at 7 months old. 16 years later and I'm following in his footsteps.

  Jana shares how one particular physician, Dr. Alan Nugent, has supported her throughout the journey with complex congenital heart disease and inspired her goals to pursue a career in medicine.

• ‘Braver than any child should have to be’: A Mother’s Reflection on the Trials of Childhood Cancer

  Follow the courageous journey of Cole, a young boy who faced a life-changing battle with cancer. Discover how his family, community and the 'Cards for Cole' campaign provided hope, support, and resilience during this challenging time.

• A Little More Hope Than Fear: Looking Back on Fetal Surgery for Emmie & Gracie

  With the expertise and support of Dr. Shaaban and Lurie Children's Chicago Institue for Fetal Health, Annie gave birth to Emmie and Gracie. Today, the girls are healthy and living life to the fullest.

• With Superhero Strength, Leo Defies Mental Health Stigmas

  After being diagnosed with ADHD, Leo began working Lurie Children's Dr. John Parkhurst. Through therapy, Leo learned how to harness his skills and strengths to better communicate with his family and friends.