Lurie Children's Blog Search Results

• Multidisciplinary Care Helps Darcie Thrive with Rare Congenital Muscular Dystrophy

  Darcie was diagnosed with merosin deficient muscular dystrophy- a very rare form of congenital muscular dystrophy.

• Father Battling Aggressive Cancer Sees Son Receive Life-Saving Kidney Transplant from High School Classmate

  Just one week after learning Ashley was pregnant with Miles, the Wagners received devastating news.

• Jonah’s Story – Raising Awareness for Infantile Spasms

  Jonah’s 6-month EEG soon showed that he was at high risk for developing a devastating form of childhood epilepsy known as Infantile Spasms. 

• Eleven Years After an Intestinal Transplant, Nicolas is Still Going Strong

  At Mindy's 29-week ultrasound, her obstetrician noticed a problem believed to be easily fixed but turned out to be a life-threatening condition for her son.

• ECMO Survivors: Samantha's Story

  Samantha was born via a C-section 12 days after her original due date. Soon after birth, doctors discovered that she had a diaphragmatic hernia.

• Children at Heaven's Door - ECMO Survivors: Tyler's Story

  In 1992, Tyler was born and immediately diagnosed with 100% meconium aspiration syndrome. His case was serious enough to need a form of life support called ECMO. 

• ECMO Survivors: Baby Eleanor's Story

  Baby Eleanor was born with a diaphragmatic hernia that required surgery as one-week old. ECMO helped her survive and recover from her operation.

• ECMO Survivors - Jessica's Story

  After Jessica was born with a severe case of meconium aspiration syndrome, she needed to be transferred to Lurie Children's to be put on ECMO. 

• ECMO Survivors - Madeline's Story

  Read about Madeline's journey with ECMO as a newborn.

• ECMO Survivors - Drew's Story

  When Drew was two months old, he was admitted to Lurie Children’s with respiratory distress and bilateral pleural effusions. ECMO was Drew’s only shot at survival.

• ECMO Survivors - Chelsea's Story

  Chelsea was on ECMO for 30 days, which is the longest amount of time anyone is allowed to be on the machine. 

• Offering Hope and Support to Other Transgender Kids

  Daniel writes about growing up transgender and the PBS documentary Growing Up Trans. 

• Growing Up Trans: A Parent’s Perspective

  One family shares their experience about being featured in the FRONTLINE documentary, Growing Up Trans.

• “I Wanted to Help People Understand What It’s Like to Be Trans.”

  One teenage boy opens up about his experience with the hope that he can help people understand what it's like to be trans.