Lurie Children's Blog Search Results

• Aerodigestive Program Helps Madison Breathe Easier

  Born with her vocal cords fused together and subglottic stenosis, Madison underwent laryngeotracheal reconstruction, enlarging her narrow airway.

• Keeping Hope for Hendrix

  When Hendrix Mascara, 2, was born four-weeks early, his parents knew immediately something was more concerning than his premature arrival.

• One in One Million – Opsoclonus Myoclonus Syndrome

  In February 2017, Kate became one in a million. She was diagnosed with Opsoclonus Myoclonus Syndrome (OMS), a very rare neurological disorder.

• Then and Now: A Look Back on Move Day, June 9, 2012 with Jodi

  Jodi has been a patient of Lurie Children’s since she was 6 months old when she underwent her first brain surgery for hydrocephalus.

• Then and Now: A Look Back on Move Day, June 9, 2012 with Emiliano

  Emiliano “Emi”  was the first patient we moved on June 9, 2012 from Lincoln Park to Streeterville.

• Multidisciplinary Care Helps Darcie Thrive with Rare Congenital Muscular Dystrophy

  Darcie was diagnosed with merosin deficient muscular dystrophy- a very rare form of congenital muscular dystrophy.

• Father Battling Aggressive Cancer Sees Son Receive Life-Saving Kidney Transplant from High School Classmate

  Just one week after learning Ashley was pregnant with Miles, the Wagners received devastating news.

• Jonah’s Story – Raising Awareness for Infantile Spasms

  Jonah’s 6-month EEG soon showed that he was at high risk for developing a devastating form of childhood epilepsy known as Infantile Spasms. 

• Eleven Years After an Intestinal Transplant, Nicolas is Still Going Strong

  At Mindy's 29-week ultrasound, her obstetrician noticed a problem believed to be easily fixed but turned out to be a life-threatening condition for her son.

• ECMO Survivors: Samantha's Story

  Samantha was born via a C-section 12 days after her original due date. Soon after birth, doctors discovered that she had a diaphragmatic hernia.

• Children at Heaven's Door - ECMO Survivors: Tyler's Story

  In 1992, Tyler was born and immediately diagnosed with 100% meconium aspiration syndrome. His case was serious enough to need a form of life support called ECMO. 

• ECMO Survivors: Baby Eleanor's Story

  Baby Eleanor was born with a diaphragmatic hernia that required surgery as one-week old. ECMO helped her survive and recover from her operation.

• ECMO Survivors - Jessica's Story

  After Jessica was born with a severe case of meconium aspiration syndrome, she needed to be transferred to Lurie Children's to be put on ECMO. 

• ECMO Survivors - Madeline's Story

  Read about Madeline's journey with ECMO as a newborn.

• ECMO Survivors - Chelsea's Story

  Chelsea was on ECMO for 30 days, which is the longest amount of time anyone is allowed to be on the machine. 

• ECMO Survivors - Drew's Story

  When Drew was two months old, he was admitted to Lurie Children’s with respiratory distress and bilateral pleural effusions. ECMO was Drew’s only shot at survival.