Lurie Children's Blog Search Results

• Taking One Step at a Time: Charlotte’s Journey with Spina Bifida

  Emotions took a turn when Lindsay and Paul found out their daughter was diagnosed in-utero with myelomeningocele, the most severe type of spina bifida. 

• Malakai’s Story: A Team of Experts Takes On A Mystery Illness

  Emily noticed changes in her typically happy-go-lucky son. He complained of severe stomachaches, joint pain, headaches, and a burning sensation on his skin.

• Brain Surgery Technique Zaps Farhana’s Seizures

  For the first two years of her life, Farhana’s days were consumed by seizures. At Lurie Children's, her family found hope in an advanced technique. 

• Girl Born Profoundly Deaf Reaches for the Sky, and Finds Her Dream Job There

  Ellie Graeber says she has never let the profound hearing impairment in both of her ears get in the way of what she wants, and she has the record to prove it.

• Congenital Diaphragmatic Hernia – Our Family’s Journey

  One family shares their journey after their child was diagnosed with congenital diaphragmatic hernia in utero.

• Bringing Awareness to Rare Diseases

  At five months old, Dominic was diagnosed with congenital disorders of glycosylation (CDG). 

• “A Beautifully Adventurous Life”: New Mom Reflects on Twin’s Life-Saving Heart Surgeries

  An ultrasound showed that Baby B’s heart was not fully formed, a result of a congenital heart defect known as hypoplastic left heart syndrome (HLHS).

• "This is Surreal": New Breakthrough Therapy for Cystic Fibrosis Gives Family Hope

  With Trikafta, a newly FDA-approved treatment for cystic fibrosis, Joe's lung function appears the same as a person without the disease.

• Twin Girls Thrive Thanks to Expertise in Fetal Surgery

  Kimberly underwent additional tests which indicated that the twins were suffering from twin-to-twin transfusion syndrome (TTTS). 

• Following Airway Surgery, Jakob, 3, is Home for Good

  Soon after he was born, Jakob was diagnosed with chronic lung disease and endured a stroke and brain bleeding, among other issues.

• Physical Therapy Helps Palmer Thrive

  “We support a very fragile, developing brain in an environment that it’s not meant to be in,” says Cheryl, a physical therapist at Lurie Children’s.

• Harper is “A New Child” After Lymphatic Malformation Removal

  What seemed like a typical tumble for fifteen month old Harper, revealed a larger concern for her parents, as they discovered a marble-sized bump on her neck.

• Liam Tackles Rare Congenital Bladder Condition with Urology Team

  A rare condition, bladder exstrophy occurs when the bladder or bowel does not form properly in utero.

• Family Discovers 8-Year-Old’s Single-Sided Deafness, and a Remedy for It

  Cochlear implants are electronic devices that help many children with significant hearing loss

• Maddy Ray: An Inspiration for Those Fighting Hepatoblastoma

  Luke and Katie’s world got turned upside down when their six-month old baby girl, Maddy Ray, was diagnosed with a hepatoblastoma.

• Interventional Radiology Cutting-Edge Procedure Puts Brooklyn Back in the Game

  Sitting on the sidelines is not something nine-year-old Brooklyn is accustomed to doing.