Lurie Children's Blog Search Results

• “Super Ellie” and the Power of Pulmonary Artery Reconstruction

  A rare heart condition threatened 3-year-old Ellie's life. Discover her miraculous pulmonary artery reconstruction story and superhero strength.

• Two Leukemias, One Fierce Little Girl: Zepplyn’s Story

  Zepplyn was just 8 months old when she was diagnosed with a rare, aggressive leukemia. Read how her family and care team helped her fight, and thrive.

• Finding Hope for Hirschsprung’s, Far From Home

  From high-risk pregnancy to rare disease diagnosis, discover how Lurie Children's Hospital helped one family navigate Hirschsprung's disease. Now thriving, baby Dawood is home and pain-free.

• From NICU to Kindergarten: Joey's Journey with Down Syndrome

  From complex surgeries to first steps, Joey has overcome incredible odds. Supported by a loving family and dedicated care team, Joey's journey with Down syndrome is a testament to a child's resilience. 

• Mia's Story: A Little Warrior With Big Impact – Living with Trisomy 18 (Edwards Syndrome)

  After years of facing several medical challenes, Mia is now a thriving 6-year-old. Her family's journey at Lurie Children's inspired them to found the Edwards Syndrome Association and change lives.

• Owen Thrives with Fewer Seizures After First-Ever Genetic Treatment for Dravet

  When Owen was diagnosed with Dravet syndrome at 13 months old, no treatments addressed the genetic root cause. Today, 12-year-old Owen is thriving after joining the first gene therapy trial for Dravet syndrome at Lurie Children's Hospital—offering new hope for rare epilepsy treatment. 

• For Milo Foundation

  After losing their son Milo to CDH at 18 days old, Sarah and Kevin created the For Milo Memorial Fund to help families facing the loss of a child with end-of-life expenses.

• Evie’s Story: Celebrating Milestones after d-TGA Surgery

  From devastating prenatal diagnosis to thriving toddler. Learn how Lurie Children's Heart Center transformed one family's journey with compassionate, comprehensive care.

• Avonlea's Story: Life the Rare Way

  Avonlea is 1 of an estimated 1,000 people in the world to be diagnosed with a rare genetic condition called Cardiofaciocutaneous syndrome. Read about the milestones and rare moments her mom says has made their journey more meaningful than she could have ever imagined. 

• After Tumor Diagnosis, Lurie Children’s Provides ‘Only Opportunity to Preserve’ Georgie’s Fertility

  After cancer threatened her fertility at age 4, Georgie's parents turned to Lurie Children's groundbreaking program to preserve her future family options.

• Luna’s Story: A Tiny Heart with Tremendous Courage

  At the 23-week ultrasound, Ashlee and Marty learned their baby had a serious heart defect known as hypoplastic left heart syndrome (HLHS). Thankfully, advances in pediatric heart care have transformed what’s possible for babies, turning once-unimaginable diagnoses into treatable conditions with real hope for the future.

• Among the First at Lurie Children’s: Emmanuel’s Path to a Cure for Sickle Cell Disease

  For Emmanuel, new possibilities for his sickle cell disease appeared once he met his care team led by Dr. Robert Liem and Dr. Sonali Chaudhury at Lurie Children’s. 

• Bravery in BiPAP: How Angel Built Confidence Through the PAP Desensitization Clinic

  Read about how Angel went from fearing his BiPAP machine to calling it his "best friend"—and why his journey with Lurie Children's PAP Desensitization Clinic represents a crucial innovation in pediatric care.

• A Lurie Children’s First: Dual Heart-Liver Transplant Gives Debron a New Beginning

  After months of waiting and a lifetime of surgeries, Debron received the call that changed everything. Discover how this resilient 16-year-old and his family found hope and a "CCU family" during a historic dual-organ transplant.

• McKenna’s Story: A Fast-Moving Stroke, a Lifesaving Response

  When 12-year-old McKenna collapsed during gym class, a rapid diagnosis of pediatric stroke changed everything. Thanks to the swift action of her school nurse and the expert neurointerventional team at Lurie Children’s, McKenna underwent a life-saving procedure that led to a full recovery.

• 10 Years of Celebrating Aidan’s Life: How the Aidan Shea Foundation Honored His Legacy and Supported PICU Families

  This tribute commemorates the 10th anniversary of the Aidan Shea Foundation. Over the last decade, the foundation and the Elmhurst community have raised over $200,000 for Lurie Children’s, ensuring Aidan’s generous spirit continues to impact others.