Lurie Children's Blog Search Results

• Mia's Story: A Little Warrior With Big Impact – Living with Trisomy 18 (Edwards Syndrome)

  After years of facing several medical challenes, Mia is now a thriving 6-year-old. Her family's journey at Lurie Children's inspired them to found the Edwards Syndrome Association and change lives.

• Continued Cardiac Care Helps Meilani Thrive After Tetralogy of Fallot Repair

  Meilani was born with Tetralogy of Fallot and pulmonary atresia. See how Lurie Children's Heart Center has supported her through multiple surgeries and a thriving childhood.

• For Milo Foundation

  After losing their son Milo to CDH at 18 days old, Sarah and Kevin created the For Milo Memorial Fund to help families facing the loss of a child with end-of-life expenses.

• 10 Years of Celebrating Aidan’s Life: How the Aidan Shea Foundation Honored His Legacy and Supported PICU Families

  This tribute commemorates the 10th anniversary of the Aidan Shea Foundation. Over the last decade, the foundation and the Elmhurst community have raised over $200,000 for Lurie Children’s, ensuring Aidan’s generous spirit continues to impact others.

• With a Rare and Serious Diagnosis Before Birth, Aptly Named Baby Hope Defies the Odds

  Six-month-old Hope is busy growing up at home – playing with toys, babbling and trying to roll over. For her parents, each routine milestone feels like a little bit of a miracle.

• Smiley Sophia: A Legacy of Giving That Lives On

  Even while fighting cancer, Sophia chose to give. Learn how one teenager's selfless Make-A-Wish transformed the lives of patients at Lurie Children's Hospital — and continues to do so today.

• From NICU to Kindergarten: Joey's Journey with Down Syndrome

  From complex surgeries to first steps, Joey has overcome incredible odds. Supported by a loving family and dedicated care team, Joey's journey with Down syndrome is a testament to a child's resilience.

• Angel’s Story: An Arizona Family’s Journey to Fetoscopic Spina Bifida Care

  When Diana learned her son Angel would be born with spina bifida, she feared the worst. Discover how fetal surgery at Lurie Children's gave her family hope — and changed Angel's life before he was even born.

• The Seroka Sisters: How One Ornithine Transcarbamylase Deficiency (OTC) Diagnosis Changed a Family

  What began as a little girl’s search for answers became a diagnosis that helped protect and guide an entire family. Read the Seroka family's remarkable journey.

• 1 in 25,000: Blaire’s Strength through a Rare Journey

  When a routine scan revealed their daughter had a rare lung condition, Nicole and Jeremy turned to Lurie Children's for answers. Her family is now participating in The Walk for Lurie Children's to raise awareness and honor the care that brought Blaire home.

• “Super Ellie” and the Power of Pulmonary Artery Reconstruction

  A rare heart condition threatened 3-year-old Ellie's life. Discover her miraculous pulmonary artery reconstruction story and superhero strength.

• Two Leukemias, One Fierce Little Girl: Zepplyn’s Story

  Zepplyn was just 8 months old when she was diagnosed with a rare, aggressive leukemia. Read how her family and care team helped her fight, and thrive.

• Finding Hope for Hirschsprung’s, Far From Home

  From high-risk pregnancy to rare disease diagnosis, discover how Lurie Children's Hospital helped one family navigate Hirschsprung's disease. Now thriving, baby Dawood is home and pain-free.

• Owen Thrives with Fewer Seizures After First-Ever Genetic Treatment for Dravet

  When Owen was diagnosed with Dravet syndrome at 13 months old, no treatments addressed the genetic root cause. Today, 12-year-old Owen is thriving after joining the first gene therapy trial for Dravet syndrome at Lurie Children's Hospital—offering new hope for rare epilepsy treatment. 

• Evie’s Story: Celebrating Milestones after d-TGA Surgery

  From devastating prenatal diagnosis to thriving toddler. Learn how Lurie Children's Heart Center transformed one family's journey with compassionate, comprehensive care.

• Avonlea's Story: Life the Rare Way

  Avonlea is 1 of an estimated 1,000 people in the world to be diagnosed with a rare genetic condition called Cardiofaciocutaneous syndrome. Read about the milestones and rare moments her mom says has made their journey more meaningful than she could have ever imagined.