Lurie Children's Blog Search Results

• Owen Thrives with Fewer Seizures After First-Ever Genetic Treatment for Dravet

  When Owen was diagnosed with Dravet syndrome at 13 months old, no treatments addressed the genetic root cause. Today, 12-year-old Owen is thriving after joining the first gene therapy trial for Dravet syndrome at Lurie Children's Hospital—offering new hope for rare epilepsy treatment. 

• For Milo Foundation

  After losing their son Milo to CDH at 18 days old, Sarah and Kevin created the For Milo Memorial Fund to help families facing the loss of a child with end-of-life expenses.

• Evie’s Story: Celebrating Milestones after d-TGA Surgery

  From devastating prenatal diagnosis to thriving toddler. Learn how Lurie Children's Heart Center transformed one family's journey with compassionate, comprehensive care.

• Avonlea's Story: Life the Rare Way

  Avonlea is 1 of an estimated 1,000 people in the world to be diagnosed with a rare genetic condition called Cardiofaciocutaneous syndrome. Read about the milestones and rare moments her mom says has made their journey more meaningful than she could have ever imagined. 

• After Tumor Diagnosis, Lurie Children’s Provides ‘Only Opportunity to Preserve’ Georgie’s Fertility

  After cancer threatened her fertility at age 4, Georgie's parents turned to Lurie Children's groundbreaking program to preserve her future family options.

• Setting the Pace in Cardiogenetic Care at Lurie Children’s

  Find expert genetic heart care for children at Lurie Children's. From prenatal testing to specialized clinics, our team translates genetic insights into personalized treatment plans.

• Genetic Testing for Heart Disease: What You Need to Know

  Lurie Children's experts answer the most frequently asked questions about genetic testing and screening to help you understand and manage your family's cardiovascular health. 

• Understanding Gut Health and Anxiety in Kids

  Discover how stress and anxiety affect your child's stomach and get expert tips on helping kids with IBS, tummy troubles and anxiety-related GI issues.

• Probiotics for Kids

  Curious about probiotics for your child? Our expert dietitian breaks down what probiotics are, how they work and if they're safe for kids of all ages. 

• Does Family History of Heart Disease Affect My Child?

  Does heart disease run in your family? Find out what parents need to know about genetic risk, inherited conditions and the importance of early intervention for your child's heart health. 

• Luna’s Story: A Tiny Heart with Tremendous Courage

  At the 23-week ultrasound, Ashlee and Marty learned their baby had a serious heart defect known as hypoplastic left heart syndrome (HLHS). Thankfully, advances in pediatric heart care have transformed what’s possible for babies, turning once-unimaginable diagnoses into treatable conditions with real hope for the future.

• Why Lurie Children's is the Right Choice for Your Child's Heart Transplant

  Choosing the right hospital for a child’s heart transplant is one of the most significant decisions a family can make. Our Heart Center team wants to help make this decision easier. 

• When a Fever Is Not Just a Fever: What Every Parent Should Know

  When should you worry about your child's fever? Discover age-based guidelines, emergency warning signs and critical symptoms like Kawasaki disease to watch for.

• Among the First at Lurie Children’s: Emmanuel’s Path to a Cure for Sickle Cell Disease

  For Emmanuel, new possibilities for his sickle cell disease appeared once he met his care team led by Dr. Robert Liem and Dr. Sonali Chaudhury at Lurie Children’s. 

• High Cholesterol in Children

  High cholesterol affects kids too. Discover how to recognize risk factors, understand test results and help your child build heart-healthy habits for life.

• Bravery in BiPAP: How Angel Built Confidence Through the PAP Desensitization Clinic

  Read about how Angel went from fearing his BiPAP machine to calling it his "best friend"—and why his journey with Lurie Children's PAP Desensitization Clinic represents a crucial innovation in pediatric care.