Lurie Children's Blog

Stories, guidance, and discoveries. All, for your one.

Stay updated on the latest pediatric news and research with Lurie Children's blog.

From expert health tips to inspiring patient stories to ground-breaking research, we help you stay connected to our people and programs year-round. Browse Lurie Children's blog, your go-to resource for pediatric education and innovation.

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Understanding Trisomy and Genetics

Learn about Trisomy 9 Mosaic syndrome (T9M), genetic variants, and how Lurie Children's dedicated Chromosome 9 Program is advancing research and patient care.

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Owen Thrives with Fewer Seizures After First-Ever Genetic Treatment for Dravet

When Owen was diagnosed with Dravet syndrome at 13 months old, no treatments addressed the genetic root cause. Today, 12-year-old Owen is thriving after joining the first gene therapy trial for Dravet syndrome at Lurie Children's Hospital—offering new hope for rare epilepsy treatment. 

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For Milo Foundation

After losing their son Milo to CDH at 18 days old, Sarah and Kevin created the For Milo Memorial Fund to help families facing the loss of a child with end-of-life expenses.

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Evie’s Story: Celebrating Milestones after d-TGA Surgery

From devastating prenatal diagnosis to thriving toddler. Learn how Lurie Children's Heart Center transformed one family's journey with compassionate, comprehensive care.

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Avonlea's Story: Life the Rare Way

Avonlea is 1 of an estimated 1,000 people in the world to be diagnosed with a rare genetic condition called Cardiofaciocutaneous syndrome. Read about the milestones and rare moments her mom says has made their journey more meaningful than she could have ever imagined. 

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After Tumor Diagnosis, Lurie Children’s Provides ‘Only Opportunity to Preserve’ Georgie’s Fertility

After cancer threatened her fertility at age 4, Georgie's parents turned to Lurie Children's groundbreaking program to preserve her future family options.

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