The Cystic Fibrosis Foundation
The Cystic Fibrosis Foundation (CFF) was established in 1955 by a group of parents of children with CF whose mission was to improve the quality of life for those with CF and to develop treatments and a cure.
The CFF promotes state-of-the-art specialized care by supporting and accrediting more than 100 care centers nationwide. Clinical trials and new drug discovery are conducted efficiently through the creation of CFF Therapeutics (a non-profit drug discovery and development affiliate) and the CFF Therapeutics Development Network (a centralized network of accredited CF centers that allows clinical trials to be streamlined).
The CF Foundation network of accredited care centers gives caregivers and patients access to new and relevant information. The CF Foundation website is an excellent resource for patients and families who want to learn more about CF.
Together, the comprehensive medical team is well equipped to serve children for any medical issue that may arise. In showing our commitment to the constant improvement of quality and length of life for children and adults living with cystic fibrosis, and in accordance with Cystic Fibrosis Foundation goals, we promise to:
- Treat children and young adults with CF and their families as partners in care through timely and open communication
- Provide care that is respectful of patient's needs, preferences and values
- Provide medical and nutritional care that is aimed at achieving normal growth and good nutrition
- Prescribe therapies that have been proven to slow the progression of lung decline and decrease the frequency of pulmonary exacerbations
- Accurately diagnose and aggressively treat pulmonary exacerbations to minimize the loss of lung function
- Work with our outpatient programs, hospital, patients and families to minimize the chances of spread of infection in both health care and community settings
- Monitor for complications of CF, especially CF-related diabetes mellitus, and treat complications with the best proven therapies when they arise
- Assure that all individuals with CF receive appropriate treatment regardless of race, religion, education or insurance coverage
- Provide timely, complete and compassionate guidance for difficult decisions such as lung transplantation
- Protect the privacy of all patients and families
- Actively participate in research that will improve the understanding of CF, and find new therapies to control and cure CF